This page will be periodically updated, as time permits, with more questions and answers - so check back frequently!
 
 

Where can I go in Michigan for the neurostimulation treatment that was discussed at the Kettering University FMS / Chronic Pain Forum?

The neurostimulation technique spoke about at the pain forum is a unique new technology that is being studied to determine if it is effective in treating Fibromyalgia.  While other forms of neurostimulation exist, and may be practiced in some clinical settings in Michigan, we are not aware of any place that is utilizing the technique being studied.  Our hope is to eventually create a clinical center in Flint to provide effective treatments and therapies for FMS and other chronic pain conditions.  The outcome of our research study will have a bearing on whether neurostimulation will be utilized in that clinical setting.  Unfortunately, it may take quite some time to realize this goal.  Watch the news link on this webpage for information.

What are the costs related to neurostimulation? Is this something that is covered by insurance?

Some insurance companies do provide coverage in clinical settings where this technique is practiced (for example Dr. Esty's office near Washington, DC).  However, with ANY kind of new treatment and/or therapy, getting insurance acceptance is a difficult process.  It is important to prove that a new treatment is effective, and that it can be cost competitive with other treatments.  In the case of the neurostimulation technique, the goal of the research is to test for effectiveness.  If it proves effective, then the next goal will be to make it cost competitive.

Is testing for Substance P or serotonin something commonly done in medical labs?

Unfortunately no, these are only done in specialized laboratory settings.  Testing of Substance P, for example, requires extraction of cerebral spinal fluid and highly sophisticated testing.  Therefore, testing of these neurochemical markers is not likely to become a common way of diagnosing FMS any time soon.

Is there a connection between FMS and seizure disorders?

We believe that FMS may be related to dysfunction of the brain in regulating neurochemical responses to pain.  Seizure disorders are also related to brain function.  So in the sense that both of these conditions may be linked to some form of brain dysfunction, there may be a connection.  However, seizure disorders are not considered a clinical feature of FMS.

Is FMS fatal, or does it affect the normal lifespan?

FMS is not a fatal illness, nor is it progressive.  There is no evidence at all to suggest that persons living with FMS should expect a shorter life span.

How can I find a "good" doctor for my Fibromyalgia?

Perhaps the most important thing is to educate yourself about your illness so that you will know when you have found the right doctor.  Clearly, finding a physician who is knowledgeable in chronic pain conditions, including FMS, is one of the keys to management of your illness.  But the only way you can know whether the doctor is "up to speed" on FMS is to educate yourself.  This is extremely important!  The books we provide on the suggested reading page of this website will help you a great deal!

Can stress cause FMS?

Stressful periods are among the many things that may possibly trigger FMS.  Stress is also a perpetuator of musculoskeletal pain conditions, and therefore may contribute to FMS flare-ups.

Is Polymyalgia related to Fibromyalgia?

Polymyalgia is a form of arthritis, where Fibromyalgia is not.  Although symptoms may be similar, Polymyalgia causes a raised sedimentation rate on blood tests and is thus detectable.  For more information on Polymyalgia and how to tell the difference between it and Fibromyalgia, contact the Arthritis Foundation

"I was told by my doctor that FMS pain is caused by being in pain from something else for years.  Is this true?"

We believe that FMS is the result of any number of factors that lead to central sensitization (CS).  When CS occurs the central nervous system becomes highly sensitive to pain-causing stimuli, so sensitive that even things that should not cause pain do (a condition called allodynia).  Being in a painful condition for a period of time is believed to be one possible condition that can lead to central sensitization, and thus to FMS.

Can EEGs be used to diagnose Fibromyalgia?

At this time there is no established criteria specifically for clinical diagnosis of FMS.  The use of EEG markers is being investigated as a possible clinical marker that might be useful in diagnosis.

"My doctor says that Fibromyalgia can be a precursor to Lupus.  Is this true?"

No.  Lupus is an autoimmune disease in which the immune system attacks normal tissues.  Fibromyalgia is a condition of the central nervous system.  There is no direct relationship.  However, patients with Lupus are at risk of developing “secondary FMS”, a degree of central sensitization that is likely to be a central nervous system response to the already-existing Lupus.

What is your opinion on other therapies?

We have received a number of questions about other therapeutic interventions, ranging from TENS units to prolotherapy to the use of magnets.  We would refer you to the body of research that has been conducted on specific interventions that you may be interested in and encourage you to base your opinions on the findings of that research.

Can not liking loud noises be a symptom? How about sensitivities to smell? Or light?

Since FMS is characterized by a hypersensitivity to different stimuli, it stands to reason that some individuals may experience sensitivity to sound, smell, light, etc.

I have restless leg syndrome.  Is this related to my FMS?

Restless leg syndrome may affect your ability to get meaningful sleep, which in turn is likely to perpetuate FMS.  If you suspect that you may have a sleep disorder, ask your doctor about having a sleep study done.  Findings from these may be very valuable in helping control your FMS.

Could brain injury come from excessive carbon monoxide exposure?

Yes.  If you suspect that you have experienced carbon monoxide poisoning you should bring that to the attention of your doctor.

Can Fibromyalgia follow Lyme Disease?

Lyme Disease is among many microbial agents that may trigger the onset of Fibromyalgia, and perpetuate its symptoms.

Are certain foods bad for Fibromyalgia?

Nutritional inadequacies and/or deficiencies may perpetuate many chronic musculoskeletal pain conditions.  Therefore, it is generally important for a patient (FMS, chronic myofascial pain, etc.) to maintain a well-balanced, healthy diet.  However, if you have food allergies or sensitivities then eating these foods will likely perpetuate your symptoms.